He held it firmly in his fingers, and I watched as he traced
the tip along the wall edges. Up, across, over, a pattern and a rhythm
understood only by him.
But I knew.
It was a Friday afternoon in Target, and the din of people
talking, machines warming food humming behind the counter, and the
less-than-friendly overhead lights were all difficult to drown out. I kept my
eyes downcast, focused on the breadsticks that I was eating, dipping them into
the tiny cup of marinara sauce like a brush in paint, watching the crisp brown turn
red.
I have not needed a feather of my own in many years. I knew
why he did.
The woman with him—a sister, perhaps, or caretaker, I
couldn’t be sure—spoke to him in that peculiar way. Autism-speak. The pitch of
her voice just a shade unnaturally high, as if talking to a child instead of a
15-year-old boy.
“Can you come over here, Oliver?”
I felt her teetering perilously on the tightrope-thin hope that he would listen, be good, be still. But it’s hard to keep still when you know you make people uneasy just by existing in an autistic body.
Her praise for him came shortly after: “Good job listening!”
“Can you come over here, Oliver?”
I felt her teetering perilously on the tightrope-thin hope that he would listen, be good, be still. But it’s hard to keep still when you know you make people uneasy just by existing in an autistic body.
Her praise for him came shortly after: “Good job listening!”
After a moment’s
pause, Oliver kept moving, pacing around the cramped food court in slow, steady
steps. The woman stood at the counter with a shopping cart, placing their order
while keeping her gaze fixed on him. A myriad of emotions swirled through me as
I tried not to stand up and shout solidarity at the top of my lungs. Instead, I
kept quiet, carefully eyeing them both.
And then he stopped. Right behind my chair.
He hovered in what other people might consider uncomfortably
close proximity. The feather was still clutched in his grasp, that source of
comfort kept so close by. Flashes of the hair scrunchie I had always worn on my
wrist came to mind, along with the memory of nearly clawing at my skin to
escape the world around me, muted only by the soothing sensation of the fabric.
I get it. I’m a lot
like you, Oliver.
The woman with him didn’t know that, though. She was looking
in our direction, mild panic washing over her face as Oliver continued to
stand behind me. Her shoulders tensed like I know my mother’s must have when I
was a child and we were out in public. I could sense what would come next,
could feel the word before she ever uttered it. She looked right at me, teeth
pressed together tightly in an impossibly white row:
“Sorry…” she said, the apologetic twinge in her voice cutting
like a knife in my stomach.
A stream-of-consciousness set of responses rushed through
my mind:
Don’t be sorry! Don’t
EVER be sorry! You never, ever need to apologize for him. HE doesn’t need to
apologize for being who he is! NONE OF US DO.
I shook my head, pushing away the tears threatening to
appear at the corner of my eyes, and waved a hand dismissively. I answered her,
my voice quavering slightly:
“No, no!”
Behind me, Oliver continued what he was doing, and I fought
the urge to hug him.
The woman alternately glanced between the counter and Oliver,
still uncertain. As I ate the last few bites of my breadsticks, I realized I
had to say something.
I walked over to her, half under the pretense of throwing
out the breadstick box in the garbage behind her, and took a deep breath.
"Excuse me...Is he autistic?"
Cautious optimism colored her cheeks, along with a hint of
surprise. She turned to face me, her demeanor almost relaxed compared to how
tense it had been moments earlier.
"Yes. Yes, he is," she replied, confirming what I
had known all along.
Without
hesitation, I responded:
"Me,
too."
We quickly fell to talking, and I learned that she worked at
an autism school nearby, where Oliver was a student. I told her of my work as
an international speaker and autism advocate, and how I knew all-too-well what
Oliver was going through, having been on that path myself many years ago.
It was a moment that none of us could have expected, our
paths crossing in Target on a Friday afternoon. The relief on her face was
drawn in shapes; round cheekbones that rose instead of sank, and lines on her
forehead that had stopped creasing even just briefly. Happiness and wistful
sadness filled me in combined measure, wishing that my family could have felt
that relief when I was Oliver's age. How it would have meant the world to
encounter a stranger in public who didn't stare, didn't whisper, point, or disdainfully
glance in our direction. How it would have given us all such comfort to know
that we weren't alone in walking this strange, unpredictable, incredible
journey of autism.
For me, those years are long past, but for Oliver and so
many others like him, and for their loved ones and caregivers, these moments
are present and alive. As we move into the start of a new year, I am thinking
of all the Olivers out there, the autistic individuals and families looking for
promise and hope in the days ahead. As an international speaker, advocate, and
someone who has been where you are: I see you. I understand, and I am here to
help.
You are not alone.
Amy:
ReplyDeleteI was caught by the feather too.
So she was neither a sister nor a caregiver - she was a teacher.
Thank you, Amy, for seeing, understanding and being here to help.
That was one chancy encounter!
And of course Oliver knew you before you asked.